A little bit concerned

We went for treatment today and unfortunately Grant got a little sick. He hasn't been sick in several treatments. I wish we could figure out why sometimes he gets sick and sometimes he doesn't. He said on the way home, "my throat has cramps." The only time I can remember having "throat cramps" it was followed by yuck. But he didn't throw up. He has had a really upset tummy this afternoon. It is always hard to convince him to take more Zofran. He takes Zofran right before he gets his chemo. So he thinks it is the Zofran that makes him sick. He screams and cries, he ran from me today and I had to force him to take it. He doesn't have to swallow the chemo, so it isn't real for him. He does taste it though. Isn't that weird? They said that anything injected through your blood stream affects your senses. So he tastes it but he doesn't know what it is he's tasting since he isn't swallowing.
But we are a little concerned because last month Dr. Rapkin asked about the bumps on his face. I never would have thought it was anything, but he wanted us to watch it. After a week or so of trying to remember where the bumps were from day to day, I started taking pictures of his face. They are really funny, you can't see the bumps unless you zoom in big time. I NEVER would have been concerned. In fact, today, Melissa our PA said, "if he were a normal kid, this wouldn't be anything but dry skin and I'd think you were crazy for bringing him in. But he's not normal and we may need a biopsy." If you remember, LCH can manifest itself in the bones, skin and organs. Grant's is only in his bones. He had a head CT only about 6 weeks ago and it was great. So I find it odd (so does Melissa) that he would be developing new LCH in a new way without growth in the old places. Because of that, we aren't super worried. This week is his 5 day push of Prednisone. Melissa said to watch it this week and see if it gets better. If it gets better, that isn't good. Dry skin doesn't react to steroids, LCH does. So needless to say, the pictures are going to be very important this week! Here is tonight's picture...he looks perfectly fine doesn't he? You have to zoom in to see patchy eczema type flakes around his left nostril, eye and corner of his mouth.